HUNTSVILLE, Ala. (WHNT) — Ahead of the 25th annual Walk to Defeat ALS News 19 is introducing to a look women who isn’t letting her ALS diagnosis defeat or define her.
Robin Miller’s journey began a little over two years ago when she started noticing pain in her shoulder and side. She would also become short of breathe when doing things she enjoyed like baking and cooking.
It was at her wellness check up when her doctors noticed her weight loss.
“That’s when they noticed I lost twenty pounds in two months and I’m flabbergasted because I’d been trying to loose weight and couldn’t,” Miller said.
After nearly two years of doctors visits, she received her diagnosis of ALS in April 2024. She says during that time, if she could change one thing it would be that her doctors would have communicated better so she would have gotten her diagnosis sooner.
“The doctors don’t talk to each other, so that’s why you have to go from one to the other. If I had any say in that in this situation is why can’t we all sit at the table and discuss the results. So that the diagnosis doesn’t take as long to get to you.”
ALS, also known as stands for Amyotrophic Lateral Sclerosis, is a fatal neurological disease that can affect the way a person breathes, speaks, and walks. According to the ALS Association every 90 minutes someone is diagnosed with ALS.
For Miller, ALS has a different meaning: Abundant Life Still.
“We still have a lot of life to live and it’s an abundant life and that’s what we are gonna do,” said Miller.
Since her diagnosis with ALS, Miller and her family live by the motto “faith over fear.” She says the support has been overwhelming, and the relationships you build help see you through.
“My church, my sorority, his fraternity, our A&M community, has just been phenomenal,” said Miller.
You can donate to Robin’s Walk to Defeat ALS fundraising page here. If you are interested in registering for Saturday’s walk, you can visit the ALS Association’s website here.
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