Originally appeared on E! Online
Hannah Campbell is navigating a devastating loss.
The TikToker shared her daughter Elliana Rose has died at only 10 months old after battling junctional epidermolysis bullosa (JEB), a rare condition that causes fragile and blistering skin.
“Our sweet girl Elliana Rose lost her battle last night,” Hannah captioned the April 8 TikTok. “She passed peacefully, wrapped in love.”
She continued, “I don’t know what to do with myself today. I’m heartbroken, and I’m angry. No child should have to endure what she did. EB stole her from us. Let’s fight for a cure so no other family has to feel this.”
The accompanying video featured a sweet montage of moments throughout Elliana’s life, set to Benson Boone’s “In The Stars.”
Hannah concluded her post—which was soon filled with countless messages from those expressing their condolences—with gratitude for the support shown to her family throughout Elliana’s life.
According to the Mayo Clinic, JEB can cause blisters “in response to minor injury, even from heat, rubbing or scratching,” and can even cause blistering inside the body, such as in the “lining of the stomach or mouth.”
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Since welcoming Ellianna, Hannah has used social media to share her family’s journey and raise to raise awareness for JEB, her TikTok account accumulating over 700 thousand followers.
Among her posts was one in which Hannah educated her followers on the differing types of epidermolysis bullosa, of which Elliana’s was particularly severe.
“Severe JEB often takes lives way too soon, and even the ‘milder’ form still causes daily pain, wounds and lifelong challenges,” she wrote in the video. “There is no cure, but there is hope. Every child with EB deserves a future without pain. Spreading awareness leads to research, treatments and one day a cure.”
Elliana’s care, Hannah explained, involved “constant wound care, special medical supplies and adaptive equipment to keep her comfortable and safe,” including nebulizer treatments, humidifiers, electrolytes and Pedialyte administered in a syringe.
Hannah also made sure to document the family’s happiest moments, including with husband Jacob and their older daughter Ember.
Among Valentine’s Day celebrations, a first Christmas and a trip to Disney World and the beach was an excursion to a snowy lake in February, of which Hannah wrote, “Making every moment an adventure, knowing each one is a gift.”
The February 26 video showed the family of four enjoying time by a wood-burning stove, alongside the frozen lake and among the trees.
“Filling her world with as much adventure as we can,” Hannah wrote in the video, “for as long as we can.”
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